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Charity Listing

Importance of Fundraisers for NF

There is no cure for NF2. There is yet to be a medication that will shrink all 3 NF2 tumor types (Schwannomas, Meningiomas and Ependymomas) that are found in individuals with NF2. The tumor types that have shrunk from medication have only been effective up to a certain percentage. But the medications do not even work for everyone.

Included here are charities you can donate to to help find a cure for NF2.

Resources In This Category -


  • Charities in the USA: Department of Defense - Congressionally Directed Medical Research Programs, CTF - The Children's Tumor Foundation, CTF-NF Endurance, CTF-NF Race for Research , CTF-NF Walk, CTF-NF Camp, NF - Neurofibromatosis, Inc., Run 4 NF, NF Midwest, Advocure NF2, Help Stop NF2, Texas NF Foundation,
  • Charities Outisde of the USA: British Columbia NF Foundation, Society of Ontario, NF Canada, UK - British Columbia Neurofibromatosis Foundation, NF Oceania, NF Brasil, Neurological Health Charities Canada,

Charities in the USA

Department of Defense - Congressionally Directed Medical Research Programs
The Office of Congressionally Directed Medical Research Programs (CDMRP) is funded through the Department of Defense (DoD), via annual Congressional legislation known as the Defense Appropriations Act.
CTF - The Children's Tumor Foundation
Goal: Finding a cure to NF. Combining committed board members and talented staff, the Foundation has advanced NF research by making the best possible use of donated funds.
Address: 95 Pine Street, 16th Floor New York, NY 10005-4002
Phone: (212) 344-6633
CTF-NF Endurance

CTF-NF Race for Research

CTF-NF Walk

CTF-NF Camp

NF - Neurofibromatosis, Inc.
Post Office Box 66884
Chicago, Illinois 60666
(800) 942-6825
Run 4 NF

NF Midwest
473 Dunham Rd, Suite 3
St. Charles, IL 60174
(630) 945-3562
Advocure NF2
P.O. Box 4118
Clearwater, FL 33758-4118
Help Stop NF2
8201 164th Ave NE Suite 200
Redmond, WA 98052
(888) 687-5640
Texas NF Foundation
3030 Olive Street
400 Victory Plaza East
Dallas, Texas 75219
(972) 868-7943 or (877) 515-TXNF

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Charities Outisde of the US

British Columbia NF Foundation

Society of Ontario

NF Canada

UK - British Columbia Neurofibromatosis Foundation

NF Oceania

NF Brasil

Neurological Health Charities Canada


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