There is no cure for NF2. There is yet to be a medication that will shrink all 3 NF2 tumor types (Schwannomas, Meningiomas and Ependymomas) that are found in individuals with NF2. The tumor types that have shrunk from medication have only been effective up to a certain percentage. But the medications do not even work for everyone.
Included here are charities you can donate to to help find a cure for NF2.
Department of Defense - Congressionally Directed Medical Research Programs The Office of Congressionally Directed Medical Research Programs (CDMRP) is funded through the Department of Defense (DoD), via annual Congressional legislation known as the Defense Appropriations Act. |
CTF - The Children's Tumor Foundation Goal: Finding a cure to NF. Combining committed board members and talented staff, the Foundation has advanced NF research by making the best possible use of donated funds. Address: 95 Pine Street, 16th Floor New York, NY 10005-4002 Phone: (212) 344-6633 |
CTF-NF Endurance |
CTF-NF Race for Research |
CTF-NF Walk |
CTF-NF Camp |
NF - Neurofibromatosis, Inc. Post Office Box 66884 Chicago, Illinois 60666 (800) 942-6825 |
Run 4 NF |
NF Midwest 473 Dunham Rd, Suite 3 St. Charles, IL 60174 (630) 945-3562 |
Advocure NF2 P.O. Box 4118 Clearwater, FL 33758-4118 |
Help Stop NF2 8201 164th Ave NE Suite 200 Redmond, WA 98052 (888) 687-5640 |
Texas NF Foundation 3030 Olive Street 400 Victory Plaza East Dallas, Texas 75219 (972) 868-7943 or (877) 515-TXNF |
British Columbia NF Foundation |
Society of Ontario |
NF Canada |
UK - British Columbia Neurofibromatosis Foundation |
NF Oceania |
NF Brasil |
Neurological Health Charities Canada |