NF2 Resources
- NF2 Support
- Living with NF2 Blogs, You Tube, Caring Bridge, Memorial
- Facebook Groups
- Yahoo Groups
- NF2 Charities
- Top Treatment Locations
NF Hospital/Clinic List, Top Hospitals - Medical News Sources
- Medical Coverage
- Research Sources
- Assistive Options
NF2 News
Resources
Facebook Groups
Resources In This Category -
NF2 NYC Support Group, NF2 Crew - Closed Group, Young NF2, NF2 Smile Project, NF at NIH, NF Endurance Team, Advocure NF2, Deaf Social - Long Island, NY, Deaf Linx, The Hearing Blog, NF2 Ohio Gathering, Help Stop NF2 Foundation, Ccac Captioning The Collaborative for Communication Access Via Captioning, Online Support for Hearing Loss, Deaf and Hard of Hearing Group!, Facial Palsy - Courage to Smile, NF2 - Afinitor - Everolimus (RAD-001), Auditory Brainstem Implant Technology, NF Awareness Petition, Cochlear Implant Music List, NF2 UK,
 NF2 NYC Support Group Our support group meets approximately every three months in NYC at the center for Hearing and Communication in Manhattan. We share experiences, offer advice, support, and socialize. |
 NF2 Crew - Closed Group Open to the NF2 community only. Invitation required. If you have NF2 Request to Join. |
 Young NF2 A place for people to meet and talk with others who have Neurofibromatosis Type 2. |
 NF2 Smile Project We help support any expenses that come along with this operation ranging from travel to doctors bills. Help us give a smile to those who more than deserve it. |
 NF at NIH This Group is a private group for those who are involved in the case study at NIH (National Institute of Health) for our Neurofibromatosis (type 1 (NF1) type 2 (NF2) and schwannomatosis) Also family support for patients involved can also join. |
 NF Endurance Team NF Endurance is a fundraising program of the Children's Tumor Foundation. The foundation's mission is to cure neurofibromatosis; a life-long progressive disorder. |
 Advocure NF2 Advocure is dedicated to advocacy and to strengthening efforts that expedite research contributing to systemic therapies to treat and eventually cure NF2. |
 Deaf Social - Long Island, NY Once a month is Deaf Night at Dave and Busters in Farmingdale, NY. This Facebook Group is for some of the people who go for Deaf Night. Open Group, all are welcome. |
 Deaf Linx Deaf Linx is your resource for information on deafness, deaf culture, American Sign Langauge (ASL) and all other related topics. Deaf Linx firmly believes that deafness is not a disability, but a condition that produces a sub-culture that should be celebrated. Many people are unaware of all the accomplishments that deaf individuals have made and the unique ways in which they have come together to create a distinctive identity. Whether you are a deaf person or someone with hearing loss, looking for other individuals in your area, or you just want to learn about deaf culture or deaf society, our resources on deafness are for you. |
 The Hearing Blog This group discusses issues related to Hearing and Deafness, with the occasional detour into related topics such as acoustics, noise control, and high fidelity audio. |
 NF2 Ohio Gathering The NF2 community has yearly gatherings where many of us travel from across the US or to the US just to meet in Ohio for a chance to make friends with others like us. |
 Help Stop NF2 Foundation Together we will STOP NF2 SEE YOU AT THE TOP! Help Stop NF2 is a 501c3 charity devoted to spreading awareness and finding a medical cure for the disease NF2. www.HelpStopNF2.org 888-687-5640 |
 Ccac Captioning The Collaborative for Communication Access Via Captioning Captioning Inclusion Advocacy Community that makes things happen! All volunteers. Grass-roots. Free membership. Join now, individuals and groups, email ccacaptioning@gmail.com. |
 Online Support for Hearing Loss Here's a place you can bring your hearing loss questions, offer and/or ask for support, advice, inspiration or just VENT! This is a "closed" group meaning that only members can see posts, but the group and group members are visible. Like I always say, there's power in numbers. WELCOME! |
 Deaf and Hard of Hearing Group! |
 Facial Palsy - Courage to Smile A group dedicated to individuals and their families who share the experience of having or knowing someone with a unique condition of facial nerve damage or paralysis. "Courage to Smile" is a place to share experiences, laugh, talk, and most importantly.......a place to smile! |
Chat group for people on Everolimus for NF2. |
This group is for people who have an interest in Auditory Brainstem Implant (ABI) technology. |
Neurofibromatosis. Hard to pronounce? Try living with the most common neurological disorder. Neurofibromatosis (NF) is divided into NF1, affecting every 1 in 4,000 births and NF2 affecting 1 in every 40,000 births. NF is known to cause cognitive disorders, chronic muscle and joint pain, the growth of several tumors on the spine, brain, just about anywhere in the human body. There is no treatment o...r cure for NF, other than surgery. Often surgery is not an option due to the complexity of the surgery. Often after surgery, a tumor(s) grow back. If a cause and cure are to be found for NF in the near future, government, the medical community, and the general public must be made fully aware of the scope of Neurofibromatosis. |
Listening to music is an integral part of auditory therapy; and in fact last year there was groundbreaking R&D out of Northwestern University that positively showed correlation between music appreciation and speech discrimination in noise using new brain imaging techniques. To further these goals, I created this group as a fun place where members ...-- Cochlear Implant (CI) users, experts, and even by invitation a few musicians & performers -- can freely discuss CI compatibility; and post links to songs so others can discuss & comment on them ("Cue It or Screw It!") whether it sounds any good for them &/or if their CI kiddies like it. |
 NF2 UK SUPPORTING PEOPLE AFFECTED BY NF2 A group for people affected by Nf2 and their families. Nf2 can be a very isolating condition so the group aims to offer support and provide an opportunity for discussion about all things related to Nf2. |