NF2 Resources
NF Clinic
NF2 Clinic - NYC Doctors
NF Clinics > NYU
NYU is the only hospital in the metropolitan area offering a complete team of doctors experienced with and focused on NF2. It is one of the very few such places in the country.
Managing NF2 is not just about surgery, it is about managing all of the issues caused by NF2. This means being able to locate different types of doctors, physical therapies and special sources who have also dealt with NF2 that can help us with some of the rest.
NYU Doctors
| Doctor Name | Specialty | Title |
|---|---|---|
| Mitchell, Carole Wind, RN | NF Clinical Coordinator | Registered Nurse |
| Jody C. Gill-Prysock, M.S., C.I. | Interpreter Services | Director of Language, Cultural & Disability Services |
| Roland, J. Thomas, M.D. | ENT - ABI & CI | Neurosurgery, Co-director of NYU Cochlear Implant Center |
| Shapiro, William H., Au.D. CCC-A | Audiologist | Clinical Associate Professor of Otolaryngology |
| Golfinos, John G., M.D. | Brain Neurosurgeon, Stereotactic Radiosurgery | Chairman of the Department of Neurosurgery |
| Frempong-Boadu, Anthony K., M.D. | Neurosurgeon - Spinal Surgery | Associate Professor - Department of Neurosurgery |
| Wisoff, Jeffrey H., M.D. | Neurosurgery - Brain Tumors | Associate Professor, Neurosurgery & Pediatrics |
| Sen, Chandranath, M.D. | Neurosurgery - Skull Base Surgery | Director of Skull Base Surgery & Cranial Nerve Disorders |
| Allen, Jeffrey C., M.D. | Neurologist | Pediatric Hematology Oncology |
| Karajannis, Matthias A., M.D. | Clinical Drug Trials | Pediatric Hematology Oncology |
| Steele, Mark A., M.D. | Neuro-ophthalmology | Pediatric Ophthalmology - Strabismus |
| Warren, Floyd A., M.D. | Neuro-ophthalmology | Departments of Ophthalmology |
| Miller, Philip J., M.D. | Facial Surgery - Plastic & Reconstructive | Clinical Assistant Professor of Otolaryngology |
| Pappas, John G., M.D. | Genetics | Director of Clinical Genetics Services |
| Schaffer, Julie, M.D., B.D. | Dermatology | Assistant Professor of Dermatology & Pediatrics |
| White, W. Matthew, M.D. | Cosmetic/Reconstructive Surgeon | Assistant Professor - Department of Otolaryngology |
| DeLacure, Mark D., M.D. | Cancer, Otolaryngology, Plastic Surgery | Associate Professor, Otolaryngology & Plastic Surgery |
Physical Therapy & Hospital Services
| Neurofibromatosis Center | Cochlear Implant Center | Physical Therapy | |
| Balance Therapy | Swallowing | Vocational Services | |
| Interpreter Services | MRI Facilities | Occupational Therapy |
Additional NYC Specialists
| Hospital | Doctor Name | Specialty | Phone |
|---|---|---|---|
| New York Eye & Ear Infirmary | Christopher J. Linstrom, M.D. | Neuro-Otolaryngology . Otology & Neurotology | 212-979-4200 |
| Manhattan Neurosurgical Associates | Raj Murali, M.D. | Neuro-Otolaryngology . Otology & Neurotology | 212-604-7767 |
| New York Presbyterian Weill Cornell | Theodore H. Schwartz, M.D. | Neurosurgeon | 212-746-5620 |
| New York Presbyterian Weill Cornell | Philip E. Stieg, M.D. Ph.D | Neurosurgeon | 212-746-4684 |
| New York Presbyterian Weill Cornell | Samuel H. Selesnick, M.D. | Otolaryngologist | 212-962-3277 |
| New York Presbyterian Weill Cornell | Jacqueline S. Winterkorn, M.D. Ph.D | Neuro-Ophthalmologist | 212-746-3072 |
| New York Presbyterian Weill Cornell | Kaleb Yohay, M.D. Ph.D | Pediatric Neuro-Oncology | 212-746-3278 |
| New York Presbyterian Weill Cornell | Mark M. Souweidane, M.D. Ph.D | Neurological Surgery | 212-746-2363 |