NF2 Resources - A Complete List
Fri Mar 02, 2012
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| resourceid | topic | cat | link | title | image | about |
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| 1 | blog | about us | http://sites.google.com/site/allysonshope/our-blog | Allyson | | Allyson's Hope |
| 2 | blog | about us | http://ambershope4life.blogspot.com | Amber | | Hope 4 Life |
| 3 | blog | about us | http://inthegenes-genesandjumpers.blogspot.com | Anna | | Genes and Jumpers - Disability and NF2 |
| 4 | blog | about us | http://nfmanymiles.blogspot.com | Anne | | One-Hundred-Forty-Point-Six Miles to help cure NF- Swim. Bike. Run. Cure NF. |
| 5 | blog | about us | http://thingsfallapart-cindy.blogspot.com | Cindy | | Things Fall Apart |
| 6 | blog | about us | http://glad-to-hear.blogspot.com | Girish | | Glad to Hear |
| 7 | blog | about us | http://hollyalonzo.com | Holly Alonzo | | Never Giving Up Hope |
| 8 | blog | about us | http://learningtomakelemonade.blogspot.com | Jacob | | Learning to make lemonade.... |
| 9 | blog | about us | http://przybysz.wordpress.com | Jamie | | anomalous adventures - existence in liminal spaces |
| 10 | blog | about us | http://lifeinspiresme.com | Jessica | | Life Inspires Me |
| 11 | blog | about us | http://scarlapetto.blogspot.com | Johnna | | 40 and On |
| 12 | blog | about us | http://ilsette7.blogspot.com | Jose | | terapia |
| 13 | blog | about us | http://bionickatie.blogspot.com | Katie | | Bionic Katie - My Life adventures as being a medical Pionneer |
| 14 | blog | about us | http://kzcz.blogspot.com | KC | | So Be It... |
| 15 | blog | about us | http://leahmanth.com | Leah | | Run4Leah-CureNF |
| 16 | blog | about us | http://fabulousrunningmommy.blogspot.com | Olivia | | The Fabulous Running Mommy |
| 17 | blog | about us | http://diverbeck.blogspot.com | Rebecca Dufek | | NF2 Odyssey |
| 18 | blog | about us | http://nf2chic.blogspot.com | Shanna | | Life is Based on Hope and Faith |
| 19 | blog | about us | http://theschwannsupremacy.wordpress.com | Tim | | NF2: Cures or Gift |
| 20 | blog | about us | http://www.yvonnefoong.com | Yvonne | | Yvonne Foong |
| 21 | video | about us | http://www.youtube.com/watch?v=KEV4rlGCJkY&feature=g-all-u&context=G2b1598fFAAAAAAAAAAA | Heather | | Part 3 - I did it! |
| 22 | video | about us | http://www.youtube.com/watch?v=lA-PWLk9yto&feature=related | Heather | | Part 2 - Never Give Up! |
| 23 | video | about us | http://www.youtube.com/watch?v=7ntW47wXzn0&sns=em | Heather | | Part 1 - Never Give Up! |
| 24 | video | about us | http://www.youtube.com/watch?v=0QOr2h-TBLo | Courtney | | A Struggle for Hope |
| 25 | video | about us | http://www.youtube.com/watch?v=O_ESM6J8nX4 | Jamie | | Neurofibromatosis type 2~NF2 Awareness |
| 26 | video | about us | http://www.youtube.com/watch?v=5-3U-zG8EVE&feature=related | Kcat | | KCAT AProbe! TV |
| 27 | video | about us | http://www.youtube.com/watch?v=SxGOBQIdNhE | Lynn | | Neurofibromatosis type 2 (NF2) Awareness |
| 28 | video | about us | http://www.youtube.com/watch?v=AnEHrTyTikQ | Rebecca | | Pole Pole "The Slow Walk" |
| 29 | video | about us | http://www.youtube.com/watch?v=EOEOO0jgRpQ&feature=related | Ryan | | NF:2 VLog 1 - Introducing myself |
| 30 | video | about us | http://www.youtube.com/watch?v=sqLT5SEztB0&feature=relmfu | Adam and Bara | | Adam and Bara talk about Neurofibromatosis |
| 31 | video | more | http://www.youtube.com/watch?v=1dMzTNItqNA&feature=relmfu | NF Camp | | Neurofibromatosis Camp |
| 32 | video | more | http://www.youtube.com/watch?feature=player_embedded&v=g9vgsIvtnHY | CTF: Investing in a Cure | | Neurofibromatosis: Investing in a Cure (captioned) |
| 33 | nf2news | medical | http://www.ctf.org/blog/ | Childrens Tumor Foundation News Blog | ctf.jpg | The Children's Tumor Foundation is a non-profit 501(c)(3) medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses (NF). |
| 34 | nf2news | medical | http://www.advocurenf2.org/05_newsletter.html | Advocure Compass | Advo4.jpg | NF2 Compass is Advocure's quarterly newsletter, and was formerly known as Flutterby. |
| 35 | nf2news | medical | http://www.nf2nycsupport.org/ | NYC NF2 News | nyc.jpg | The NF2 NYC news listing listing, is a collection of medical news articles from a variety of resources on a variety of topics important to individuals with NF2. |
| 36 | nf2news | medical | http://www.medicalnewstoday.com/ | Medical News Today | mednews3.jpg | Medical News Today brings you hourly health news from well-regarded sources such as JAMA, BMJ, Lancet, BMA, plus articles written by our own team. Our archive contains over 225,000 news articles. |
| 37 | nf2news | medical | http://www.sciencedaily.com/ | Science Daily | sd.jpg | ScienceDaily is one of the Internet's most popular science news web sites.
No other web site offers readers the depth and breadth of breaking news about the latest scientific discoveries that ScienceDaily does in such a user friendly format . all freely accessible with no subscription fees. |
| 40 | hospital | nfclinic | http://neurosurgery.mgh.harvard.edu/NFclinic | MGH NF Clinic (Massachusetts General Hospital) | mgh.jpg | Founded in 1982 by Dr. Robert Martuza, the MGH NF Clinic was one of the first to acknowledge the unique multi-disciplinary problems that the NF patient and family face and the vital role that a dedicated clinic plays in the research community. The NF Clinic offers a comprehensive initial evaluation to all persons in whom a diagnosis of NF has been suggested or confirmed. |
| 39 | hospital | nfclinic | http://nf2nycsupport.org/house.php | House Research Institute - previously HEI | hei2.jpg | For a listing of HRI NF2 Specialists, Visit: House Research Institute NF2 Specialist Listing
In January 2008 Dr. Marco Giovannini founded the Center for Neural Tumor Research at House Research Institute with a mission to translate research on the cellular and molecular basis of NF2-related tumorigenesis into tools relevant for the treatment of the disease.
To accomplish this programmatic vision, the members of the Center have begun to develop several research projects and initiatives in close partnership with clinicians at the House Clinic, and with a network of collaborators worldwide that are pivotal for accomplishing and widening the mission of the Center. |
| 42 | hospital | nfclinic | http://www.nih.gov/ | NIH NF Studies (National Institute of Health) | nih.jpg | The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services External Web Site Policy , is the nation's medical research agency making important discoveries that improve health and save lives.
NIH is the largest source of funding for medical research in the world, creating hundreds of thousands of high-quality jobs by funding thousands of scientists in universities and research institutions in every state across America and around the globe. |
| 43 | hospital | nfclinic | http://neurofibromatosis-network.org/ | NF Network | nfnetwork.jpg | The NF Network includes a complete listing of NF organizations world wide. |
| 44 | hospital | notanfclinic | http://www.nyp.org/ | New York - Presbyterian / Columbia University | nyp2.jpg | |
| 45 | hospital | notanfclinic | http://www.mskcc.org | Memorial Sloan-Kettering | sloan.jpg | |
| 46 | hospital | notanfclinic | http://www.mountsinai.org | Mount Sinai | mtsi.jpg | |
| 47 | hospital | notanfclinic | http://www.northshorelij.com | North Shore - LIJ | lij.jpg | |
| 48 | hospital | notanfclinic | http://www.hopkinsmedicine.org | Johns Hopkins | hopkins.jpg | |
| 49 | hospital | notanfclinic | http://www.iuhealth.org | Indiana University Health | iuh.jpg | |
| 50 | hospital | notanfclinic | http://www.goodmancampbell.com | Goodman Campbell - Brain and Spine | gbbs.jpg | |
| 51 | hospital | notanfclinic | http://www.mayoclinic.com | Cleveland Clinic | clcl.jpg | |
| 52 | hospital | notanfclinic | http://www.mayoclinic.com/ | Mayo Clinic | mayo.jpg | |
| 53 | medical | research | http://www.ncbi.nlm.nih.gov/sites/entrez | PubMed | pubmed.jpg | PubMed comprises more than 21 million citations for biomedical literature from MEDLINE, life science journals, and online books. Citations may include links to full-text content from PubMed Central and publisher web sites. |
| 54 | medical | research | http://www.clinicaltrials.gov/ | Clinical Trials | clinicaltrials2.jpg | ClinicalTrials.gov is a registry and results database of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. This information should be used in conjunction with advice from health care professionals. |
| 55 | medical | research | http://www.nejm.org/ | New England Journal of Medicine | neweng.jpg | The New England Journal of Medicine (NEJM.org) is dedicated to bringing physicians the best research and key information at the intersection of biomedical science and clinical practice, and to presenting the information in an understandable and clinically useful format. |
| 56 | medical | research | http://www.medicalnewstoday.com/ | Medical News Today | mednews3.jpg | Medical News Today brings you hourly health news from well-regarded sources such as JAMA, BMJ, Lancet, BMA, plus articles written by our own team. Our archive contains over 225,000 news articles. |
| 57 | medical | research | http://www.nih.gov | NIH - National Institute of Health | nih.jpg | The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services External Web Site Policy, is the nation's medical research agency making important discoveries that improve health and save lives. |
| 58 | medical | research | http://www.anausa.org/ | Acoustic Neuroma Association | ana.jpg | ANA is a patient member organization, providing information and support to persons diagnosed with or treated for acoustic neuroma and other benign tumors of the cranial nerves. |
| 59 | medical | research | http://www.ncbi.nlm.nih.gov/ | National Center for Biotechnology Info. | ncbi2.jpg | The National Center for Biotechnology Information advances science and health by providing access to biomedical and genomic information. |
| 60 | medical | research | http://www.nlm.nih.gov/ | US - National Library of Medicine | nlm.jpg | The National Library of Medicine (NLM), on the campus of the National Institutes of Health in Bethesda, Maryland, is the world's largest medical library. The Library collects materials and provides information and research services in all areas of biomedicine and health care. |
| 61 | medical | research | http://www.ninds.nih.gov | National Institute of Neurological Disorders & Stroke | nin.jpg | The mission of the National Institute of Neurological Disorders and Stroke is to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world. |
| 62 | medical | research | http://www.nexgenixpharm.com/overview_intro.php | NexGenix | nexgen2.jpg | NexGenix is a privately-held drug discovery and development company focused on the "next generation" of targeted therapies for cancer and diseases of the nervous system such as glioblastoma, neurodegenerative diseases, neurofibromatosis, and autism-spectrum disorders. |
| 63 | medical | research | http://www.dnalc.org/ | Dolan DNA Learning Center | dolandna.jpg | The mission of the DNA Learning Center is to prepare students and families to thrive in the gene age. We envision a day when all elementary students are exposed to principles of genetics and disease risk; when all high school students have the opportunity to do hands on experiments with DNA; and when all families have access to genetic information they need to make informed health care choices. |
| 64 | medical | research | http://www.abta.org/ | American Brain Tumor Association | abta2.jpg | The American Brain Tumor Association (ABTA) provides critical funding to researchers working toward breakthroughs in brain tumor diagnosis, treatment and care, with the ultimate goal of finding a cure. The ABTA is also the recognized resource for comprehensive information and compassionate support for the brain tumor patients, families and caregivers who are living with this disease. |
| 65 | medical | research | http://www.rarediseases.org/ | National Organization for Rare Disorders | nord2.jpg | The American Brain Tumor Association exists to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families.
The National Organization for Rare Disorders is dedicated to helping the nearly 30 million Americans with rare diseases, and the organizations that serve them, through programs of education, advocacy, research, and patient services. |
| 66 | medical | research | http://www.cnfad.org/clinical.html | Center for NF and Allied Disorders | cnad.jpg | The Harvard Medical School (HMS) Center for Neurofibromatosis and Allied Disorders (CNfAD) is a virtual center that spans the HMS and its affiliated hospitals, including Brigham and Women's Hospital (BWH), Children's Hospital Boston (CHB), Dana Farber Cancer Institute (DFCI), Massachusetts General Hospital (MGH), and Beth Israel Deaconess Medical Center (BIDMC). |
| 67 | medical | research | http://www.nccam.nih.gov/about/ | National Center for Alternative Medicine | ncam.jpg | The National Center for Complementary and Alternative Medicine (NCCAM) is the Federal Government's lead agency for scientific research on the diverse medical and health care systems, practices, and products that are not generally considered part of conventional medicine. |
| 68 | medical | research | http://www.cancer.gov/ | National Cancer Institute | nci2.jpg | The National Cancer Institute (NCI) is part of the National Institutes of Health (NIH), which is one of 11 agencies that compose the Department of Health and Human Services (HHS).
The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients. |
| 69 | medical | research | http://www.journals.elsevierhealth.com/periodicals/ajpa | American Journal of Pathology | path.jpg | The American Journal of Pathology, official journal of the American Society for Investigative Pathology (ASIP) seeks to publish high-quality, original papers on the cellular and molecular biology of disease. |
| 70 | medical | research | http://www.paralysis.researchtoday.net/ | Paralysis Research Today | prt.jpg | Paralysis Research Today is a free monthly online journal that collates and summarizes the latest research about Paralysis, including details on treatment, diagnosis, facial paralysis, sleep paralysis. |
| 71 | medical | research | http://www.ukpmc.ac.uk | UK Pubmed Central | ukpubmed.jpg | UK PubMed Central (UKPMC) is a unique, innovative and free online resource offering access to information sources for biomedical and health researchers. |
| 72 | medical | research | http://www.onlinelibrary.wiley.com | Wiley Online Library | onlib.jpg | Wiley Online Library hosts the world's broadest and deepest multidisciplinary collection of online resources covering life, health and physical sciences, social science, and the humanities. It delivers seamless integrated access to over 4 million articles from 1500 journals, almost 10,000 online books, and hundreds of reference works, laboratory protocols and databases. |
| 73 | medical | coverage | http://www.ssdrc.com | Social Security Disability Insurance | Handicapped.jpg | The Social Security Disability resource center provides information on the Federal Disability Benefit Programs, SSD (social security disability, mandated under title II of the Social Security Act) and SSI (supplemental security income, mandated under title 16), in addition to answering questions about Social Security Retirement benefits and providing resource links on topics such as Medicare. |
| 74 | medical | coverage | http://www.covertheuninsured.org | The Uninsured | rwjf.jpg | The mission of the Robert Wood Johnson Foundation is to improve the health and health care of all Americans. Our goal is clear: To help our society transform itself for the better. |
| 75 | medical | coverage | http://www.cms.gov | Centers for Medicare & Medicaid Services | cms.jpg | The Centers for Medicare & Medicaid Services (CMS),key lines of business: Medicare health plans, Medicare financial management, Medicare fee for service operations, Medicaid and children's health, survey & certification and quality improvement. |
| 76 | medical | coverage | http://www.patientadvocate.org | Patient Advocate Foundation | paf.jpg | Patient Advocate Foundation seeks to empower patients to take control of their health care. Case managers work with patients to discover local, state, and federal programs that provide assistance for their individual needs. PAF has produced six major publications, several informational brochures, and several special sections devoted to certain health related topics to assist in this goal. Our case managers have also compiled a list of valuable resources that address several topics that you may find beneficial. |
| 77 | medical | coverage | http://www.hdadvocates.org | Health & Disability Advocates | hda.jpg | Health & Disability Advocates (HDA) is a national organization, based in Chicago, Illinois, that uses multiple strategies to promote income security, work and education opportunities and improve healthcare access and services for children, people with disabilities and low-income, older adults. |
| 78 | medical | coverage | http://www.nosscr.org/urity | National Organization of Social Security Claimants | nosscr.jpg | Established in 1979, the National Organization of Social Security Claimants' Representatives is an association of over 4,000 attorneys and other advocates who represent Social Security and Supplemental Security Income claimants. Our members are committed to providing high quality representation for claimants, to maintaining a system of full and fair adjudication for every claimant, and to advocating for beneficial change in the disability determination and adjudication process. |
| 79 | medical | coverage | http://www.rwjf.org/healthpolicy/product.jsp?id=39729 | Children Without Health Insurance | rwjf.jpg | The mission of the Robert Wood Johnson Foundation is to improve the health and health care of all Americans. Our goal is clear: To help our society transform itself for the better. |
| 80 | medical | coverage | http://www.ninds.nih.gov | Department of Health & Human Services | nih.jpg | The mission of NINDS is to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world. |
| 81 | medical | coverage | http://www.pparx.org/ | The Partnership for Prescription Assistance | ppa.jpg | The Partnership for Prescription Assistance helps qualifying patients without prescription drug coverage get the medicines they need for free or nearly free. |
| 82 | charity | usa | http://www.active.com/donate/nfli2011 | CTF-NF Endurance Team | endurance.jpg | |
| 83 | charity | usa | http://www.ctf.org | CTF | ctf.jpg | |
| 84 | charity | usa | http://www.run4nf.org | Run 4 NF | run.jpg | |
| 85 | charity | usa | http://www.helpstopnf2.org | Help STOP NF2 | stopnf2.jpg | |
| 86 | charity | usa | http://www.nfnetwork.org | NF Inc | nfinc3.jpg | |
| 87 | charity | usa | http://www.nfmidwest.org | NF Midwest | nfmw.jpg | |
| 88 | charity | usa | http://www.advocurenf2.org | Advocure NF2 | Advo4.jpg | |
| 89 | charity | usa | https://www.texasnf.worldsecuresystems.com/How_To_Help/How_You_Can_Help | Texas NF Foundation | texas2.jpg | |
| 90 | charity | usa | http://www.deniseterrillclassics.com/DTC/Home.html | Denise Terrill Charity Classics | charityclassic.jpg | |
| 91 | charity | usa | http://www.fccc.edu/helpingFoxChase/index.html | Fox Chase Cancer Center | fc.jpg | |
| 92 | charity | nonus | http://www.bcnf.bc.ca/get-involved/donate | British Columbia NF Foundation | bc.jpg | |
| 93 | charity | nonus | http://www.nfon.ca/donations.php | Society of Ontario | onterio.jpg | |
| 94 | charity | nonus | http://www.nfcanada.ca/html/support-nf | NF Canada | canada.jpg | |
| 95 | charity | nonus | http://www.nfauk.org/support_us/ | UK - British Columbia Neurofibromatosis Foundation | /uk.jpg | |
| 96 | charity | nonus | http://www.nfaa.org.au/about_support_us.htm | NF Oceania | australia.jpg | |
| 97 | charity | nonus | http://www.nf.org.br/shopline_dados.asp | NF Brasil | brazil.jpg | |
| 98 | charity | nonus | http://www.mybrainmatters.ca/en | Neurological Health Charities Canada | nhcc.jpg | |
| 99 | deafresources | learning | http://www.lifeprint.com | Life Print - ASLU (American Sign Language University) | aslu.jpg | American Sign Language University at Lifeprint.com is a site for ASL students and teachers. |
| 100 | deafresources | learning | http://www.aslpro.com/cgi-bin/aslpro/aslpro.cgi | ASLPro | aslpro.jpg | ASLPro.com was created to be a free resource for the classroom teacher.
We welcome the general public to view our site, but it should be noted that this site is not designed to be a stand alone learning tool. A user's best course of action is to enroll in an ASL class with a qualified teacher who can guide them in such variations as regional differences and facial expressions that are not addressed in our video database. |
| 101 | deafresources | news | http://www.ada.gov/disabilitynews.htm | Disability Rights - Online News | Government.jpg | Americans with Disabilities Act of 1990 "The Americans with Disabilities Act of 1990 (ADA) is a law that was enacted by the U.S. Congress in 1990. It was signed into law on July 26, 1990, by President George H. W. Bush, and later amended with changes effective January 1, 2009.
The ADA is a wide ranging civil rights law that prohibits, under certain circumstances, discrimination based on disability. It affords similar protections against discrimination to Americans with disabilities as the Civil Rights Act of 1964, which made discrimination based on race, religion, sex, national origin, and other characteristics illegal." - Wikipedia |
| 102 | deafresources | news | http://www.aclu.org | American Civil Liberties Union | aclu.jpg | The ACLU is our nation's guardian of liberty, working daily in courts, legislatures and communities to defend and preserve the individual rights and liberties that the Constitution and laws of the United States guarantee everyone in this country. |
| 103 | deafresources | news | http://www.deaftechnews.com/ | Deaf Tech News | dtech.jpg | General News, Gadgets and Reviews |
| 104 | deafresources | social | http://www.deafnyc.com | Deaf NYC | dnyc.jpg | NY - Deaf News, Events, Workshops, Entertainment, Employment and more. |
| 105 | deafresources | social | http://www.deafpals.com/login.php | Deaf Pals | deafpals.jpg | DeafPals is a free social networking site for the deaf and hard-of-hearing. It makes it easier to browse and locate deaf and hard-of-hearing people from all over the world. Everyone is welcome! |
| 106 | deafresources | social | http://www.facebook.com/home.php?sk=group_205548729487556#!/home.php?sk=group_72808330151 | Dave and Busters - Deaf Social - Long Island, NY | dab.jpg | Once a month is Deaf Night at Dave and Busters in Farmingdale, NY. This Facebook Group is for some of the people who go for Deaf Night. Open Group, all are welcome. |
| 107 | deafresources | social | http://www.facebook.com/groups/273116229365519/ | Hard of Hearing & Late Deaf - Online Support for Hearing Loss | hhld.jpg | Here's a place you can bring your hearing loss questions, offer and/or ask for support, advice, inspiration or just VENT! This is a "closed" group meaning that only members can see posts, but the group and group members are visible. Like I always say, there's power in numbers. WELCOME! |
| 108 | deafresources | social | http://www.facebook.com/home.php?sk=group_205548729487556#!/group.php?gid=67761572436 | Deaf and Hard of Hearing Group! | deafnhoh.jpg | "This group is only for Deaf & HOH, people who support us are also welcome" |
| 109 | deafresources | products | http://www.silentcall.com | Silent Call Communications | silent.jpg | Provide a reliable and usable personal communications and life enhancing systems for people who are deaf, deaf/blind, hard of hearing and those who are out of hearing range.
Alerting systems for deaf and blind, including:
Smoke Detectors for Deaf, Blind Alerting Devices, Deaf & Blind Electronics, and Carbon Monoxide Betector for Deaf. |
| 110 | deafresources | products | https://www.captioncall.com/captioncall/ | Caption Call | captioncall.jpg | Captioned Phone:
- 7 inch touch screen, with adjustable text size.
- Compatible with hearing aids.
- The phone connects directly to the phone line you already have, enabling you to use the same number you already have. This also means that you do not need any separate number to dial to talk to anyone.
- Any phone features you have with your phone company will apply to the CaptionCall phone, including call waiting, long distance, and voicemail.
- System goes through your phone line as well as the internet, our captioning is very fast and easy to follow.
|
| 111 | deafresources | products | http://www.sprintrelay.com/ | Sprint Relay Products | sprintrelay.jpg | Sprint Mobile Voice-To-Text Relay App and Phones, to make and receive calls anywhere, anytime. |
| 112 | deafresources | products | http://www.captel.com/ | Captel | captel.jpg | Ideal for people with some degree of hearing loss, the Captioned Telephone (CapTel) works like any other telephone with one important addition - It displays every word the caller says throughout the conversation. CapTel phone users can listen to the caller, and can also read the written captions in the CapTel's bright display window. |
| 113 | deafresources | products | https://www.cochlearupgrade.com | Cochlear - ABI's & CI's | cochlear2.jpg | "A cochlear implant (CI) is a surgically implanted electronic device that provides a sense of sound to a person who is profoundly deaf or severely hard of hearing. The cochlear implant is often referred to as a bionic ear." - Wikipedia
"The Auditory Brain Stem Implant (ABI) uses similar technology as the cochlear implant, but instead of electrical stimulation being used to stimulate the cochlea, it is instead used to stimulate the brain stem of the recipient." - Wikipedia |
| 114 | deafresources | products | http://www.harriscomm.com/ | Harris | harris.jpg | Harris is the nationwide retailer of assistive products for Deaf and Hard of Hearing people. Find vibrating alarm clocks, visual signalers, amplified telephones, sign language books & DVDs and more. |
| 115 | deafresources | products | http://www.goldviolin.com/ | Gold Violin - Independent Living | il.jpg | We select each of our lifestyle products and disability aids with attention to quality and ease of use. From a wide selection of vision aids to arthritis and back pain relief, Gold Violin has a wide variety of lifestyle products that promote independence, increase self confidence and make life more enjoyable! |
| 116 | deafresources | products | http://www.scomm.com/ | UbiDuo - sCommUbiDuo | ubi2.jpg | With the UbiDuo, communication is quick: the deaf, hard of hearing or hearing person can start a conversation right away instead of writing on paper & pen, or waiting for an interpreter to arrive. |
| 117 | deafresources | products | http://www.accesswireless.org/Home.aspx | CTIA - Phone Choices | ctia.jpg | CTIA - The Wireless Association and the wireless industry created AccessWireless.org to be your "first stop" to learn about the ever-changing world of cell phones and wireless services, and discover those that meet your specific needs. |
| 118 | deafresources | products | http://www.adcohearing.com/ | ADCO Hearing Products | adco.jpg | Specializing in Products for Deaf and Hard of Hearing People |
| 119 | deafresources | products | http://www.consumercellular.com/MobileCaptions | Consumer Cellular | concell.jpg | Mobile Captions Service (SM) enables individuals who are deaf or hard of hearing to "see" what has been said on a wireless phone display as the conversation takes place. Utilizing advanced technology included with the Nokia E5 mobile phone, Consumer Cellular is proud to offer this innovative and free captioning service to our customers. The service is similar to closed captioning on television or VCO services on a landline phone, and provides an all-in-one solution for those who would like to extend their mobility with a wireless device. |
| 120 | deafresources | products | http://www.soundbytes.com/ | Sound Bytess | sound.jpg | SoundBytes is a catalog, web and retail-based company that offers a wide range of hearing assistive devices to benefit anyone with a hearing loss. They carry a comprehensive selection of popular, well- designed items to assist users in conversation, on the telephone, watching television, and other daily activities. |
| 121 | deafresources | services | https://www.sprintip.com/index.jsp | Sprint Free Online Relay | sprint.jpg | Sprint IP Relay Service is a free service offered to Deaf, Hard of Hearing and Speech disabled individuals that allow them to place relay calls over the Internet between locations in the United States (including the territories). |
| 122 | deafresources | services | http://www.hamiltonrelay.com/index.html | Hamilton Relay | hrelay.jpg | Hamilton Relay makes it possible for deaf, hard-of-hearing or speech disabled individuals to make and receive telephone calls. |
| 123 | deafresources | services | http://www.2020captioning.com/ | 20/20 Captioning | 2020.jpg | Nationally Recognized Leader in CART, live webcasts, broadcast captioning and court reporting services. |
| 124 | deafresources | services | http://www.handson.org/ | Hands On | handson.jpg | Hands On is a New York City-based nonprofit organization dedicated to providing greater access to arts and cultural programs for the Deaf and hard of hearing communities. |
| 125 | deafresources | services | http://www.captionfish.com/ | Captionfish | fish.jpg | Captionfish has up to date listings for Movies with Captions in your local Theaters, in addition to having Movie Trailers with Captions. |
| 126 | deafresources | services | http://www.dhisnyc.com/ | Deaf Hands Interpreter Services | dhis.jpg | Deaf Hands Interpreter Services is a sign language interpreter referral agency serving New York City, Nassau & Suffolk County, and Northern New Jersey. DHIS is deaf-owned and operated.
Public facilities and private entities must now comply with current laws by providing effective communication access for individuals who are deaf and hard of hearing. Thus, demand for interpreters has increased dramatically. DHIS' mission is to meet this demand and facilitate the communication process by matching each client with the most qualified interpreter. |
| 127 | deafresources | captions | http://www.ncraonline.org/ | National Court Reporters Association | NCRA.jpg | NCRA promotes excellence among those who capture and convert the spoken word to text and is committed to supporting every member in achieving the highest level of professional expertise. |
| 128 | deafresources | captions | http://www.main.wgbh.org/wgbh/pages/mag/ | Media Access Group | wgbh.jpg | Media Access Group at WGBH has been pioneering and delivering accessible media to people with disabilities as well as their families, teachers, and friends for over 30 years. The Media Access Group continues to develop new means of access each year. Members of the group's collective staff represent the leading experts in their fields. |
| 129 | deafresources | captions | http://www.dcmp.org/ | DCMP - Deaf Communications | dcmp.jpg | DCMP's mission is to promote and provide equal access to communication and learning for students who are blind, visually impaired, deaf, hard of hearing, or deaf-blind.
The DCMP is an idea that works thanks to funding by the U.S. Department of Education and administration by the National Association of the Deaf. |
| 130 | deafresources | captions | http://www.ncraonline.org/ | National Court Reporters Association | NCRA.jpg | NCRA promotes excellence among those who capture and convert the spoken word to text and is committed to supporting every member in achieving the highest level of professional expertise. |
| 131 | deafresources | captions | http://www.main.wgbh.org/wgbh/pages/mag/ | Media Access Group | wgbh.jpg | Media Access Group at WGBH has been pioneering and delivering accessible media to people with disabilities as well as their families, teachers, and friends for over 30 years. The Media Access Group continues to develop new means of access each year. Members of the group's collective staff represent the leading experts in their fields. |
| 132 | deafresources | captions | http://www.dcmp.org/ | DCMP - Deaf Communications | dcmp.jpg | DCMP's mission is to promote and provide equal access to communication and learning for students who are blind, visually impaired, deaf, hard of hearing, or deaf-blind.
The DCMP is an idea that works thanks to funding by the U.S. Department of Education and administration by the National Association of the Deaf. |
| 133 | deafresources | captions | http://www.ncicap.org/ | National Captioning Institute (NCI) | nciglobal.jpg | Over the past three decades, NCI has remained a leading provider of closed captioning and other media access services. With a highly skilled captioning staff and state-of-the-art facilities, NCI provides the highest quality captioning services for broadcast and cable television, Webcasting, home video and DVD, and government and corporate video programming. NCI also provides subtitling and language translation services in virtually any language. |
| 134 | deafresources | info | http://www.hearinglossweb.com/ | Hearing Loss Web | hlw.jpg | Hearing Loss Web is dedicated to people who have hearing loss, but are not members of the traditional Deaf community. This includes people who consider themselves to be hearing impaired, hard of hearing, late deafened, and oral deaf. We provide information on issues, medical topics, resources, and technology related to hearing loss. |
| 135 | deafresources | info | http://www.alda.org | Association of Late-Deafened Adults (ALDA) | alda.jpg | The Association of Late-Deafened Adults is about communication and acceptance of every deafened individual. Some people lip-read, some sign, some use hearing aids, some have cochlear implants, and some need to have others write down what they are saying - and at ALDA all the above is okay! ALDAs official communication philosophy is "Whatever works!" |
| 136 | deafresources | info | http://www.chchearing.org/ | Center for Hearing and Communication (CHC) | chc.jpg | The Center for Hearing and Communication is a leading hearing center offering state-of-the-art hearing testing, hearing aid fitting, speech therapy and full range of services for people of all ages with hearing loss. |
| 137 | deafresources | info | http://www.deaflinx.com | Deaf Links | dl.jpg | Deaf Linx is your resource for information on deafness, deaf culture, American Sign Langauge (ASL) and all other related topics. Deaf Linx firmly believes that deafness is not a disability, but a condition that produces a sub-culture that should be celebrated. |
| 138 | deafresources | info | http://www.deafread.com/ | Deaf Read | deafread.jpg | Best of Deaf Blogs & Vlogs |
| 139 | deafresources | info | http://www.deaf411online.com/ | Deaf 411 Inc | deaf411.jpg | Deaf411 distributed a nationwide survey to deaf and hard of hearing consumers to identify what a city needs to be considered "Deaf-Friendly". |
| 140 | deafresources | info | http://www.deaf411.com/deaf-living-solutions | Deaf Living Solutions | deafliving.jpg | "Deaf Living Solutions", a series of internet video reports, portray different aspects of living as a deaf consumer and what services, products or resources are available to them. |
| 141 | deafresources | info | http://www.thehearingblog.com/ | The Hearing Blog (THB) | thb.jpg | The Hearing Blog: Your source for all things related to Hearing & Deafness! |
| 142 | deafresources | advocates | http://www.hdadvocates.org/ | Health & Disability Advocates (HDA) | hda2.jpg | Health & Disability Advocates (HDA) is a national organization, based in Chicago, Illinois, that uses multiple strategies to promote income security and improve healthcare access and services for children, people with disabilities and low-income, older adults. |
| 143 | deafresources | advocates | http://www.hearingloss.org/ | Hearing Loss Association of America (HLAA) | hala.jpg | The Hearing Loss Association of America (HLAA) is the nation's leading organization representing people with hearing loss.
HLAA provides assistance and resources for people with hearing loss and their families to learn how to adjust to living with hearing loss. HLAA is working to eradicate the stigma associated with hearing loss and raise public awareness about the need for prevention, treatment and regular hearing screenings throughout life. |
| 144 | deafresources | advocates | http://www.betterhearing.org/ | Better Hearing Institute | hearing.jpg | The Better Hearing Institute (BHI) is a not-for-profit corporation that educates the public about the neglected problem of hearing loss and what can be done about it. |
| 145 | deafresources | advocates | http://www.nad.org/ | The National Association of the Deaf (NAD) | nad.jpg | The NAD is the nation's premier civil rights organization of, by and for deaf and hard of hearing individuals in the United States of America. |
| 146 | deafresources | advocates | http://www.ata.org/ | American Tinnitus Association | ata.jpg | The American Tinnitus Association exists to cure tinnitus through the development of resources that advance tinnitus research. |
| 147 | deafresources | advocates | http://www.nidcd.nih.gov/ | NIDCD - National Institute on Deafness and Other Communication Disorders | nidcd.jpg | The National Institute on Deafness and Other Communication Disorders (NIDCD) is one of the Institutes that comprise the National Institutes of Health (NIH). NIH is the Federal government's focal point for the support of biomedical research. |
| 148 | deafresources | advocates | http://www.audientalliance.org/index.php | AUDIENT | audi.jpg | AUDIENT helps low income people nationwide access quality hearing aids and related care at a significantly lower cost. AUDIENT income qualifies families to be eligible for a discount on brand name hearing aids available through the AUDIENT Alliance's national network of dedicated hearing care providers. |
| 149 | deafresources | advocates | http://www.ccacaptioning.org/ | Ccac Captioning The Collaborative for Communication Access Via Captioning | ccac.jpg | CCAC IS THE PLACE TO BE FOR CAPTIONING ADVOCACY!
New inclusion of captioning, subtitles, and CART is needed is so many places: real everyday life and online. Captioning advocacy is the only mission of the CCAC. |
| 150 | dogs | info | http://www.risingwoods.org/OURFAMILY/THEDOGS/knowntoxicfoodsfordogs.htm | Known Toxic Food for Dogs | | Some foods which are edible for humans, and even other species of animals, can pose hazards for dogs because of their different metabolism. |
| 151 | dogs | info | http://www.moderndogmagazine.com/articles/10-people-foods-dogs/1896 | 10 People Food, Dogs Can Eat | | Ideas for alternative treats or for adding a little variety to your dog.s meals. |
| 152 | dogs | info | http://www.snopes.com/critters/crusader/raisins.asp | Raisin the Alarm | | Food for Dog Email Warning - Snopes Approved |
| 153 | dogs | about | http://www.deafness.about.com/od/hearingdogs/Hearing_Dogs.htm | Hearing Dog Information | about.jpg | Hearing Dogs, for accessibility, safety, and companionship. |
| 154 | dogs | about | http://www.ada.gov/qasrvc.htm | Servise Animals in Places od Business | Government.jpg | Under the Americans with Disabilities Act (ADA), privately owned businesses that serve the public, such as restaurants, hotels, retail stores, taxicabs, theaters, concert halls, and sports facilities, are prohibited from discriminating against individuals with disabilities.
The ADA requires these businesses to allow people with disabilities to bring their service animals onto business premises in whatever areas customers are generally allowed.
The ADA defines a service animal as any guide dog, signal dog, or other animal individually trained to provide assistance to an individual with a disability. If they meet this definition, animals are considered service animals under the ADA regardless of whether they have been licensed or certified by a state or local government. |
| 155 | dogs | service | http://www.assistancedogsinternational.org/ | Assistance Dogs International, Inc. | adogint.jpg | Assistance Dogs not only provide a specific service to their handlers, but also greatly enhance their lives with a new sense of freedom and independence.
The three types of Assistance Dogs are GUIDE DOGS for the blind and the visually impaired; HEARING DOGS for the deaf and hard of hearing and SERVICE DOGS for people with disabilities other than those related to vision or hearing. Although Guide Dogs for the blind have been trained formally for over seventy years, training dogs for physically and/or mentally disabled individuals is a much more recent concept. |
| 156 | dogs | service | http://www.assistancedogunitedcampaign.org/ | Hearing Dog Information | aduc.jpg | The Assistance Dog United Campaign (ADUC) is a health and human welfare organization which provides financial assistance to individuals who have the need for an assistance dog but have difficulty in raising the necessary funds and to people and programs whose purpose is to provide assistance dogs to people with disabilities.
Assistance dogs, be they guide, hearing, service, social/therapy, psychiatric or skin melanoma sniffing dogs, provide a very serious and meaningful service to people with disabilities or disabling conditions. Service dogs compensate for physical limitations by pulling wheelchairs, turning light switches on and off, and picking up dropped or needed items. |
| 157 | dogs | service | http://www.keystonehumanservices.org/ssd/ssd.php | Susquehanna Service Dogs | key.jpg | Susquehanna Service Dogs trains and provides service dogs and hearing dogs to assist children and adults to become more independent. |
| 158 | dogs | service | http://www.dogsforthedeaf.org/ | Dogs for the Deaf | dog4deaf.jpg | Rescuing and professionally training dogs to assist people and enhance their lives is what Dogs for the Deaf is all about. At Dogs for the Deaf we place professionally trained dogs free of charge. |
| 159 | dogs | service | http://www.pawswithacause.org/ | Paws With A Cause | paws.jpg | Paws With A Cause trains Assistance Dogs nationally for people with disabilities and provides lifetime team support which encourages independence. PAWS promotes awareness through education. |
| 160 | dogs | service | http://www.cci.org/site/c.cdKGIRNqEmG/b.4011065/k.A621/Northeast_Region.htm | Canine Companions | canine.jpg | The Northeast Regional Center of Canine Companions for Independence provides highly trained assistance dogs to children and adults with disabilities in 13 states including New York, New Jersey, Connecticut, Pennsylvania, Maryland, Washington DC, Virginia, West Virginia, Massachusetts, Rhode Island,Vermont, New Hampshire and Maine. |
| 161 | dogs | service | http://www.samsimonfoundation.com/ | Sam Simon Foundation | samsi.jpg | The Sam Simon Foundation - Assistance Dogs Program rescues dogs from animal shelters and humane societies to become Hearing Dogs for people who are dead or hard of hearing. |
| 162 | dogs | service | http://www.iaadp.org/ | International Association of Assistance Dog Partners | IAADP.jpg | A non-profit, cross-disability organization representing people partnered with guide, hearing and service dogs. |
| 163 | dogs | moredogs | http://www.petfinder.com | Petfinder.com Foundation | petfinder.jpg | Service Dogs may not available, but the Petfinder.com Foundation works with shelters, rescue organizations and animal welfare organizations across the country to help ensure that no adopt-able pet is euthanized for lack of a good home. |
| 164 | eye | products | http://www.store.nexternal.com/tdec/storefront.aspx | Dry Eye Shop | dryeyeshop.jpg | Eye Protection Products - Night Eye Protection, Eyewear for Dry Eyes, Hot & Cold PAcks, Eye Drops, Lid Hygiene and Lense Care |
| 165 | eye | products | http://www.agingeye.net/dryeyes/dryeyesdrugtreatment.php | The Eye Digest | eye.jpg | The Eye Digest includes a complete listing of Artificial Tears choices and the description for each. |
| 166 | eye | products | http://www.cglasses.com/styles/adventure.htm | Shatterproof Polycarbonate Goggles | cglasses.jpg | |
| 167 | eye | products | http://www.rat-bike.com/808/red-baron-motorcycleaviator-goggles-day-night/ | Motorcycle / Aviator Goggles | rat.jpg | |
| 168 | eye | info | http://www.allaboutvision.com/conditions/dryeye.htm | All About Vision - Dry Eye Syndrome | syndrome.jpg | The purpose of All About Vision is to provide consumers with an independent source of trustworthy information on eye health and vision correction options.
Many eye care products and services are available to improve your vision and eye health. However, each is effective only when used properly and in the right circumstances. |
| 169 | eye | info | http://www.dryeyepain.com/ | Dry Eye Pain | pain.jpg | Dry eye can cause intense pain. For most people who have dry eyes, including most people who experience severe pain, the standard treatments typically recommended by eye doctors provide relief. Some people, however, have tried artificial lubricants, eyelid treatments, and punctal occlusion and yet continue to experience incapacitating pain. |
| 170 | eye | info | http://www.dryeyedigest.blogspot.com/ | The Dry Eye Digest | dryeyedigest2.jpg | Blog run by the Dry Eye Company. |
| 171 | eye | info | http://www.dryeyezone.com/news/index.html | Dry Eye Zone | dryeyezone.jpg | The Dry Eye Company was started to help people suffering from chronic dry eye and related conditions. |
| 172 | balance | products | http://www.goldviolin.com/ | Gold Violin - Independent Living | il.jpg | We select each of our lifestyle products and disability aids with attention to quality and ease of use. From a wide selection of vision aids to arthritis and back pain relief, Gold Violin has a wide variety of lifestyle products that promote independence, increase self confidence and make life more enjoyable! |
| 173 | balance | products | http://www.handicapshower.info/ | Handicap Shower | shower.jpg | Handicap accessible showers are a luxurious way to transform your showering experience in the bathroom. A handicap shower can create a handicap accessible environment and allow you to shower independently. |
| 174 | balance | products | http://www.wrightstuff.biz/ | WrightStuff.biz - Adaptive Daily Living Aids | wright.jpg | WrightStuff.biz provides adapted utensils, assistive devices, gifts for the elderly, seniors, disability aids, products for the handicapped, and lots of adaptive daily living aids that make life easier. |
| 175 | balance | products | http://www.spinlife.com/ | SpinliftScooters | spin.jpg | Spinlife.com is the country's largest internet retailer of manual wheelchairs.
From electric wheelchairs to rolling walkers, SpinLife has the right product for your needs. |
| 176 | balance | products | http://www.fashionablecanes.com/Specialty_Walking_Canes.html | Fashionable Canes and Walking Sticks | fashion.jpg | Walking Canes, Walking Sticks and Folding Canes - Sspecialty walking cane for every occasion in our vast selection. |
| 177 | balance | products | http://www.activeforever.com | Active Forever - Tripod Cane Tip | active.jpg | Medical equipment and supplies for independent living through mobility, low vision aids, power scooters, wheelchairs, rollators, fitness and physical therapy products, orthopedics, exercise equipment, diabetes supplies, and other medical devices. |
| 178 | group | yahoo | http://health.groups.yahoo.com/group/NF2NYCSupport | NF2 NYC Support Group | nyc.jpg | Our support group meets approximately every three months in NYC at the center for Hearing and Communication in Manhattan. We share experiences, offer advice, support, and socialize. |
| 179 | group | yahoo | http://health.groups.yahoo.com/group/NF2_Crew | NF2 Crew | crew.jpg | The NF2 Crew Group List is an email based support group for patients and family members with the neurological disorder Neurofibromatosis Type 2. |
| 180 | group | yahoo | http://health.groups.yahoo.com/group/NF2Trialtalk | NF2 Trial Talk | trialtalk.jpg | This list is being created specifically for those interested in finding a CURE for NF2 and discussing or are participating in clinical trials. The purpose of this group is to discuss potential drugs, future clinical trials, side effects, and how we as a community can more effectively support the fundraising for these efforts. |
| 181 | group | yahoo | http://health.groups.yahoo.com/group/NF2_Social | NF2 Social | social.jpg | NF2 Social list is intended for all crew members, as well as their kids, battling NF2. A family type environment where we can take a break from our health concerns and offer each other support and understanding. We ask that as a member of this group you refrain from using foul language, dirty jokes, dirty pictures, and NO FIGHTING! |
| 182 | group | yahoo | http://health.groups.yahoo.com/group/NF2_ZOOBIES/?yguid=216627665 | NF2 Zoobies | zoo.jpg | Part of the NF2 Crew Family. Must be 18 or older. We laugh, we share jokes and we have FUN. Anything goes with us Zoobies so beware - enter at your own risk! :-) |
| 183 | group | yahoo | http://health.groups.yahoo.com/group/NF2_Roadcrew/?yguid=216627665 | NF2 Roadcrew | roadcrew.jpg | The NF2 ROADCREW is an offshoot of the NF2CREW .The ROADCREW is social style group made up of people with NF2 and their families from the NF2Crew that enjoy travelling around the world together and social discussions. If you have NF2 and would still like to join our Roadcrew you are more than welcome. |
| 184 | group | yahoo | http://health.groups.yahoo.com/group/Nf2ozline/?tab=s | Nf2 Ozline | ozline.jpg | Support group and discussion list for Australians and New Zealanders with NF2. |
| 185 | group | yahoo | http://health.groups.yahoo.com/group/neurofibromatosis_group | NF Group - NF1 and NF2 | nfgroup.jpg | This group is dedicated to sharing and giving advice about neurofibromatosis. This is a "On Topic" Moderated group. We welcome people with NF1 and NF2 along with friends and family members dealing with it. |
| 186 | group | facebook | http://www.facebook.com/home.php?sk=group_205548729487556#!/group.php?gid=163113777037124 | NF2 NYC Support Group | nyc.jpg | Our support group meets approximately every three months in NYC at the center for Hearing and Communication in Manhattan. We share experiences, offer advice, support, and socialize. |
| 187 | group | facebook | http://www.facebook.com/groups/2210940111/10150908050440112/?ref=m_notif#!/groups/295400233813076/ | NF2 Crew - Closed Group | crew.jpg | Open to the NF2 community only. Invitation required. If you have NF2 Request to Join. |
| 188 | group | facebook | http://www.facebook.com/home.php?sk=group_205548729487556#!/group.php?gid=2210940111 | NFII | nf2fb.jpg | A place for people to meet and talk with others who have Neurofibromatosis Type 2. |
| 189 | group | facebook | http://www.facebook.com/groups/Nf2smileproject/members/#!/groups/Nf2smileproject/ | NF2 Smile Project | nfsmile.jpg | We help support any expenses that come along with this operation ranging from travel to doctors bills. Help us give a smile to those who more than deserve it. |
| 190 | group | facebook | http://www.facebook.com/home.php?sk=group_125298780846807 | NF at NIH | nihfb.jpg | This Group is a private group for those who are involved in the case study at NIH (National Institute of Health) for our Neurofibromatosis (type 1 (NF1) type 2 (NF2) and schwannomatosis) Also family support for patients involved can also join. |
| 191 | group | facebook | http://www.facebook.com/group.php?gid=2222396243#!/NFEndurance | NF Endurance Team | endurance.jpg | NF Endurance is a fundraising program of the Children's Tumor Foundation. The foundation's mission is to cure neurofibromatosis; a life-long progressive disorder. |
| 192 | group | facebook | http://www.facebook.com/home.php?sk=group_205548729487556#!/pages/Advocure-NF2/113971445326791 | Advocure NF2 | Advo4.jpg | Advocure is dedicated to advocacy and to strengthening efforts that expedite research contributing to systemic therapies to treat and eventually cure NF2. |
| 193 | group | facebook | http://www.facebook.com/home.php?sk=group_205548729487556#!/home.php?sk=group_72808330151 | Deaf Social - Long Island, NY | dab.jpg | Once a month is Deaf Night at Dave and Busters in Farmingdale, NY. This Facebook Group is for some of the people who go for Deaf Night. Open Group, all are welcome. |
| 194 | group | facebook | http://www.facebook.com/deaflinx?ref=nf&sk=app_4949752878#!/deaflinx?sk=wall | Deaf Linx | deaflnxfb.jpg | Deaf Linx is your resource for information on deafness, deaf culture, American Sign Langauge (ASL) and all other related topics. Deaf Linx firmly believes that deafness is not a disability, but a condition that produces a sub-culture that should be celebrated. Many people are unaware of all the accomplishments that deaf individuals have made and the unique ways in which they have come together to create a distinctive identity. Whether you are a deaf person or someone with hearing loss, looking for other individuals in your area, or you just want to learn about deaf culture or deaf society, our resources on deafness are for you. |
| 195 | group | facebook | http://www.facebook.com/home.php?sk=group_125298780846807#!/pages/The-Hearing-Blog/209156765775017 | The Hearing Blog | hearingblog.jpg | This group discusses issues related to Hearing and Deafness, with the occasional detour into related topics such as acoustics, noise control, and high fidelity audio. |
| 196 | group | facebook | http://www.facebook.com/home.php?sk=group_72808330151#!/group.php?gid=113910925302306&v=info | NF2 Ohio Gathering | ohiogathering.jpg | The NF2 community has yearly gatherings where many of us travel from across the US or to the US just to meet in Ohio for a chance to make friends with others like us. |
| 197 | group | facebook | http://www.facebook.com/home.php?sk=group_72808330151#!/pages/Help-Stop-NF2-Foundation/307611009758?sk=info | Help Stop NF2 Foundation | stopnf2.jpg | Together we will STOP NF2 SEE YOU AT THE TOP! Help Stop NF2 is a 501c3 charity devoted to spreading awareness and finding a medical cure for the disease NF2. www.HelpStopNF2.org 888-687-5640 |
| 198 | group | facebook | http://www.facebook.com/groups/240769782641685/282653731786623/#!/profile.php?id=100001209325526 | Ccac Captioning The Collaborative for Communication Access Via Captioning | ccac.jpg | Captioning Inclusion Advocacy Community that makes things happen! All volunteers. Grass-roots. Free membership. Join now, individuals and groups, email ccacaptioning@gmail.com. |
| 199 | group | facebook | http://www.facebook.com/groups/273116229365519/ | Online Support for Hearing Loss | hhld.jpg | Here's a place you can bring your hearing loss questions, offer and/or ask for support, advice, inspiration or just VENT! This is a "closed" group meaning that only members can see posts, but the group and group members are visible. Like I always say, there's power in numbers. WELCOME! |
| 200 | group | facebook | http://www.facebook.com/home.php?sk=group_205548729487556#!/group.php?gid=67761572436 | Deaf and Hard of Hearing Group! | deafnhoh.jpg | |
| 201 | group | facebook | http://www.facebook.com/#!/groups/couragetosmile | Facial Palsy - Courage to Smile | courage.jpg | A group dedicated to individuals and their families who share the experience of having or knowing someone with a unique condition of facial nerve damage or paralysis. "Courage to Smile" is a place to share experiences, laugh, talk, and most importantly.......a place to smile! |
| 202 | group | facebook | http://www.facebook.com/groups/240769782641685/members/ | NF2 - Afinitor - Everolimus (RAD-001) | | Chat group for people on Everolimus for NF2. |
| 203 | group | facebook | http://www.facebook.com/home.php?sk=group_205548729487556#!/home.php?sk=group_177953418909440&ap=1 | Auditory Brainstem Implant Technology | | This group is for people who have an interest in Auditory Brainstem Implant (ABI) technology. |
| 204 | group | facebook | http://www.facebook.com/home.php?sk=group_205548729487556#!/group.php?gid=2231004230 | NF Awareness Petition | | Neurofibromatosis. Hard to pronounce? Try living with the most common neurological disorder. Neurofibromatosis (NF) is divided into NF1, affecting every 1 in 4,000 births and NF2 affecting 1 in every 40,000 births. NF is known to cause cognitive disorders, chronic muscle and joint pain, the growth of several tumors on the spine, brain, just about anywhere in the human body. There is no treatment o...r cure for NF, other than surgery. Often surgery is not an option due to the complexity of the surgery. Often after surgery, a tumor(s) grow back. If a cause and cure are to be found for NF in the near future, government, the medical community, and the general public must be made fully aware of the scope of Neurofibromatosis. |
| 205 | group | facebook | http://www.facebook.com/home.php?sk=group_205548729487556#!/home.php?sk=group_207326815953769 | Cochlear Implant Music List | | Listening to music is an integral part of auditory therapy; and in fact last year there was groundbreaking R&D out of Northwestern University that positively showed correlation between music appreciation and speech discrimination in noise using new brain imaging techniques.
To further these goals, I created this group as a fun place where members ...-- Cochlear Implant (CI) users, experts, and even by invitation a few musicians & performers -- can freely discuss CI compatibility; and post links to songs so others can discuss & comment on them ("Cue It or Screw It!") whether it sounds any good for them &/or if their CI kiddies like it. |
| 206 | group | nf support | http://www.nf2crew.com | NF2 Crew | crew.jpg | The NF2 Crew is an online-based support community for patients and family members (or loved ones) with Neurofibromatosis Type 2. We are one of the largest NF2 based support groups in existence with hundreds of members spanning the globe. Our "meet-ups" are held through a variety of Internet-based communication mediums. |
| 207 | group | nf support | http://www.nf2nycsupport.org | NYC NF2 Support Group | nyc.jpg | |
| 208 | group | nf support | http://www.ctf.org | The Children's Tumor Foundation | ctf.jpg | Read about the Children's Tumor Foundation's comprehensive approach to improving the lives of individuals and families affected by neurofibromatosis (NF). |
| 209 | group | nf support | http://www.nfnetwork.org | NF2 Network | nfinc3.jpg | NF Network is a national non-profit network serving families and individuals affected by Neurofibromatosis. |
| 210 | group | nf support | http://www.nf2.de | NF2 Germany | nfgermany.jpg | |
| 211 | group | nf support | http://www.nfauk.org | UK Neuro | uk.jpg | The Neuro Foundation, Neurofibromatosis Association, is the authoritative voice of Neurofibromatosis in the UK. tHEY achieve this by providing first class information, support and advice; facilitating and promoting innovative research, and being an advocate for those with Neurofibromatosis. |
| 212 | group | nf support | http://www.facialnervepalsy.com | Living with Facial Paralysis | smile.jpg | This group is looking for people affected by facial paralysis who live in the Peterborough area of the UK, people affected by Bell's Palsy, Moebius Syndrome and all other causes of facial palsy. We want to contact the local media to raise awareness, please contact us if you can get involved, three people are already on board. |
| 213 | group | nf support | http://www.nfcanada.ca/index.php | nfCanada | canada.jpg | |
| 214 | group | nf support | http://www.nfaa.org.au | Australia | australia.jpg | |
| 215 | group | nf support | http://www.texasnf.org | Texas | texas2.jpg | |
| 216 | group | nf support | http://www.nf.org.br | Brazilian NF Association | brazil.jpg | |
| 217 | group | nf support | http://www.acnefi.org/index.asp?Idioma=es | Catalana de les NF | catalina.jpg | |
| 218 | group | nf support | http://www.nfon.ca | NF Society of Ontario | onterio.jpg | |
| 219 | hospital | notanfclinic | http://medicalcenter.osu.edu | Ohio State University Medical Center | osmc.jpg | |
| 220 | deafresources | products | http://www.projectendeavor.com | Project Endeavor | prjend.jpg | This program focuses on providing deaf and hard of hearing Americans with access to broadband or high speed internet through discounted internet service plans and internet devices. Project Endeavor also provides an array of training materials and educational resources for deaf and hard of hearing people. |
| 221 | caringbridge | about us | http://www.caringbridge.org/visit/JacobWGrimes | Jacob Grimes | | |
| 222 | medical | coverage | http://www.pparx.org/ | The Partnership for Prescription Assistance | ppa.jpg | The Partnership for Prescription Assistance helps qualifying patients without prescription drug coverage get the medicines they need for free or nearly free. |
| 223 | medical | research | http://www.ukpmc.ac.uk | UK Pubmed Central | ukpubmed.jpg | UK PubMed Central (UKPMC) is a unique, innovative and free online resource offering access to information sources for biomedical and health researchers. |
| 224 | medical | research | http://www.onlinelibrary.wiley.com | Wiley Online Library | onlib.jpg | Wiley Online Library hosts the world's broadest and deepest multidisciplinary collection of online resources covering life, health and physical sciences, social science, and the humanities. It delivers seamless integrated access to over 4 million articles from 1500 journals, almost 10,000 online books, and hundreds of reference works, laboratory protocols and databases. |
| 225 | deafresources | learning | http://www.start-american-sign-language.com/ | Start Share | aslshare.jpg | The fun way to learn Americn Sign Language. |
| 38 | hospital | nfclinic | http://nf2nycsupport.org/nyuspecialists.php | NYU NF Clinic (New York University) | nyu2.jpg | For a listing of NYU NF2 Specialists, Visit: New York University NF2 Specialist Listing
Led by Jeffrey C. Allen, M. D., Director of the our Pediatric Neuro-oncology Program, J. Thomas Roland, Jr., M.D. Director of Otology and Neurotology in the Department of Otolaryngology and Co-director of the NYU Cochlear Implant Program and Dr. John Golfinos, Associate Professor of Neurosurgery, they have been developing comprehensive, multi-disciplinary programs for both pediatric and adult patients for the hereditary conditions, Neurofibromatosis Type 1 (NF1) and Neurofibromatosis Type 2 (NF2). |
| 41 | hospital | nfclinic | http://neuro.wustl.edu | WU NF Clinic (Washington University - St. Louis) | wsl.jpg | The NF Center was established to position Washington University as an international leader in NF basic and clinical research as well as to serve as a beacon for "bench to bedside" research in NF and related nervous system tumors.
The Comprehensive NF Center at Washington University is composed of clinicians and laboratory scientists focused on accelerating the pace of scientific discovery and its application to the care of individuals with NF. |
| 226 | blog | about us | http://obrienfamilyof4.blogspot.com/ | O'Brien Family | | O'Brien Family |
| 229 | balance | products | http://www.walkaide.com | The WalkAide System: For Treatment of Drop Foot | walkaid.jpg | WalkAide is a class II, FDA cleared medical device, designed to improve walking ability in people experiencing foot drop. |
| 230 | balance | products | http://www.easycomforts.com | Easy Comforts | easycomfort.jpg | Aids for Daily Living and Mobility |
| 231 | balance | products | https://www.thehurrycane.com | The Hurry Cane | hurrycane.jpg | The All-Terrain Cane. |
| 232 | balance | products | http://www.rei.com/category/4500049 | REI | rei.jpg | Hiking Staffs and Trekking Poles |
| 227 | group | yahoo | http://groups.yahoo.com/search?query=nf2uk | NF2 UK | nfuk.jpg | SUPPORTING PEOPLE AFFECTED BY NF2
A group for people affected by Nf2 and their families. Nf2 can be a very isolating condition so the group aims to offer support and provide an opportunity for discussion about all things related to Nf2. |
| 228 | group | facebook | http://www.facebook.com/pages/NF2UK/204305832949622?v=info | NF2 UK | nfuk.jpg | SUPPORTING PEOPLE AFFECTED BY NF2
A group for people affected by Nf2 and their families. Nf2 can be a very isolating condition so the group aims to offer support and provide an opportunity for discussion about all things related to Nf2. |
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Resource ID | Topic | Catagory | Link | Title | Image | About
NF2 NYC Suppport Group, New York
Email: Lori Davila at lori@nf2nycsupport.org
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DISCLAIMER: www.nf2nycsupport.org is not run by medical experts, affiliated with any healthcare organization or any other company. No assurance can be made to the accuracy or completeness of the information provided here, the accuracy of other sites to which this site links, or of sites that link to this site. While we hope the information found on the www.nf2nycsupport.org site is helpful in offering suggestions in topics to discuss with your doctor, information found here should not be considered actual medical advice. Medical advice should always be sought by consultation with a medical professional.