Living with NF2

Through the surgeries and the recoveries we fight, but the hardest parts for all of us is the fear of what our next doctor visit will bring. Here you can find links to some of our stories and battles with NF2 and the motto of the NF2 community to 'Never Give Up!'

1. Videos: Adam and Bara, Ryan, Rebecca, Lynn, Kcat, Jamie, Courtney, Heather, Heather, Heather,
2. Blogs: Allyson, Amber, Anna, Anne, Cindy, Girish, Holly Alonzo, Jacob, Jamie, Jessica, Johnna, Jose, Katie, KC, Leah, Olivia, Rebecca Dufek, Shanna, Tim, Yvonne, O'Brien Family,
3. Caring Bridge: Jacob Grimes,
4. Poem: Crystal
5. Memorial - NF2 Angels
6. Medical Videos By NF2 Doctors

Videos

• Adam and Bara - Adam and Bara talk about Neurofibromatosis
• Ryan - NF:2 VLog 1 - Introducing myself
• Rebecca - Pole Pole "The Slow Walk"
• Lynn - Neurofibromatosis type 2 (NF2) Awareness
• Kcat - KCAT AProbe! TV
• Jamie - Neurofibromatosis type 2~NF2 Awareness
• Courtney - A Struggle for Hope
• Heather - Part 1 - Never Give Up!
• Heather - Part 2 - Never Give Up!
• Heather - Part 3 - I did it!

Blogs

• Allyson - Allyson's Hope
• Amber - Hope 4 Life
• Anna - Genes and Jumpers - Disability and NF2
• Anne - One-Hundred-Forty-Point-Six Miles to help cure NF- Swim. Bike. Run. Cure NF.
• Cindy - Things Fall Apart
• Girish - Glad to Hear
• Holly Alonzo - Never Giving Up Hope
• Jacob - Learning to make lemonade....
• Jamie - anomalous adventures - existence in liminal spaces
• Jessica - Life Inspires Me
• Johnna - 40 and On
• Jose - terapia
• Katie - Bionic Katie - My Life adventures as being a medical Pionneer
• KC - So Be It...
• Leah - Run4Leah-CureNF
• Olivia - The Fabulous Running Mommy
• Rebecca Dufek - NF2 Odyssey
• Shanna - Life is Based on Hope and Faith
• Tim - NF2: Cures or Gift
• Yvonne - Yvonne Foong
• O'Brien Family - O'Brien Family

Caring Bridge

• Jacob Grimes

Poem

Dazzling Illusions by Crystal Lee Voye

Medical Videos By NF2 Doctors

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NF2 NYC Support Group, New York
Email: Lori Davila at lori@nf2nycsupport.org
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